The Beginning

Adam and I just visited with an Infectous Disease Specialist yesterday for nearly 1 hour. In all our medical experience I don't think we've had a Dr. spend this much time with us. It was quite reminiscient as we recounted his past 8+ years of medical history with this disease. It was eye-opening for me to recall just how long he has been suffering with this.

I decided to create this blog, not only for him, but so that we could catalog his history and his future. I do feel he has a bright future ahead of him, and we are going to conquer this....together! I might not even share this blog address with anyone at this point, but rather, we can use it as a way to write our thougths and feelings as we begin this next journey. I say "begin" because we are contemplating having his colon removed. Yes...I said removed.

Dr. Hale (ID Dr.) is testing for some amoebas, parasites, cryptosporidium(which Adam did have a few years ago), and TB. If nothing shows in these tests, we will start considering having the Colon removed. At this point I am praying for a parasite...is that bad?

My next step is going to be to catalog the past 8 years of medical history. Yesterday I thought it would have been so much easier to have a list of medications, when they were taken, and what the result was. If we could have just handed the Dr. a paper and said, "here...this will bring you up to speed," it would have been a lot easier. We also have some interesting information to share about Cleansing diets, all-liquid diets, enemas, Kidney stones, viruses, steroids, etc. All-in-all, this will be pretty graphic stuff, but very informative.